Privacy Policy

Last Updated: 31/12/2024

Action for BPAN ("we", "our", "us") is committed to protecting and respecting your privacy. This Privacy Policy explains how we collect, use, store, and protect your personal data when you visit our website www.actionforbpan.org.uk ("our site"), donate to us, sign up for communications, or engage with us in any other way.

By using our site and engaging with our services, you agree to the collection and use of information in accordance with this Privacy Policy.

1. Who We Are

Action for BPAN is a registered charity in the UK (Charity Number: 1210529). We are dedicated to providing support and information about BPAN to those who need it, raising awareness and supporting research into BPAN (Beta-propeller protein-associated neurodegeneration).

2. Information We Collect

We collect several types of personal data to provide and improve our services:

Personal Identification Information: Name, email address, postal address, phone number, and payment details when you make a donation or register for an event.
Payment Information: Credit/debit card details and other payment information for processing donations (please note that payment data is processed by third-party payment processors such as PayPal or JustGiving).
Donation Data: Details of donations you make, including the amount, method, and frequency of your donations.
Communication Data: Information you provide when signing up for newsletters, events, volunteer opportunities, or responding to surveys.
Technical Data: Information about how you use our website, such as IP address, browser type, operating system, and page interactions, collected via cookies.

3. How We Use Your Data

We use your data for the following purposes:

To process donations: To process your donations, provide receipts, and claim Gift Aid (if applicable).
To send communications: To keep you informed about campaigns, research, events, fundraising opportunities, and other initiatives related to our charity.
For legal and compliance purposes: To comply with legal obligations, including reporting for Gift Aid claims and other regulatory requirements.
To improve our website and services: To analyze website usage, improve user experience, and respond to your inquiries or feedback.
For administrative purposes: To manage your records, such as keeping track of donations or event registrations.

4. Legal Basis for Processing Your Data

We process your personal data under the following legal bases:

Consent: When you opt-in to receive communications (e.g., newsletters, event updates), participate in campaigns, or provide donations.
Contractual necessity: To process donations, fulfill event registrations, and other services you request.
Legal obligations: To comply with applicable laws, such as reporting Gift Aid and tax compliance.
Legitimate interests: To manage the relationship between us, including contacting you regarding fundraising activities, events, and services that may be of interest to you.

5. How We Share Your Data

We will never sell or rent your personal data to third parties. However, we may share your data in the following circumstances:

With service providers: To process payments, provide communications, or manage website functionality. These service providers will only use your data as necessary to perform their functions and are obligated to keep your information secure.
For Gift Aid claims: We may share your details with HMRC to claim Gift Aid on eligible donations.
For legal reasons: We may share your data if required to do so by law or in response to legal requests by public authorities, including law enforcement agencies.

6. How We Protect Your Data

We take your privacy seriously and implement appropriate technical and organizational measures to protect your personal data. These measures include:

Secure servers for storing personal data.
Encryption of sensitive data, such as payment details, during transmission.
Regular security assessments and audits of our systems.

While we take reasonable steps to protect your personal data, please note that no method of transmission over the Internet is 100% secure. We cannot guarantee the security of data transmitted to our site, and you do so at your own risk.

7. Your Rights Regarding Your Data

You have several rights regarding the personal data we hold about you:

Right of access: You have the right to request a copy of the personal data we hold about you.
Right to rectification: You have the right to correct any inaccurate or incomplete information we hold about you.
Right to erasure: You can request that we delete your personal data, subject to certain exceptions (e.g., if we need to retain it for legal reasons).
Right to restriction of processing: You can request that we limit how we process your data in certain circumstances.
Right to data portability: You can request that we transfer your personal data to another organization in a structured, commonly used, and machine-readable format.
Right to object: You can object to our processing of your personal data in certain situations.
Right to withdraw consent: If we are processing your data based on your consent, you can withdraw that consent at any time.

If you wish to exercise any of these rights, please contact us at actionforbpan@gmail.com.

8. Cookies

Our website uses cookies to enhance your browsing experience. Cookies are small files placed on your device that help us improve site functionality, remember preferences, and analyze site traffic.

You can control the use of cookies by adjusting your browser settings. However, blocking certain cookies may affect the functionality of the website.

For more detailed information on how we use cookies, please see our Cookie Policy.

9. Third-Party Websites

Our website may contain links to third-party websites. These links are provided for your convenience, but we are not responsible for the content, privacy policies, or practices of these third-party sites. We encourage you to review their privacy policies before sharing your personal data with them.

10. Changes to This Privacy Policy

We may update this Privacy Policy from time to time. Any changes will be posted on this page, and we will update the "Last Updated" date at the top of the policy. We encourage you to review this policy periodically to stay informed about how we are protecting your data.

11. Contact Us

If you have any questions or concerns about this Privacy Policy, or if you wish to exercise any of your rights under data protection law, please contact us:

Action for BPAN
Westfield Lodge, Old Mill Lane, Bray, Maidenhead, SL6 2BG
actionforbpan@gmail.com
Registered charity number: 1210529